Pompe disease (LOPD) research study
Ref · 173A255669
We are looking for individuals with late-onset Pompe disease (LOPD) who are interested in taking part in an interview study. The interview study is designed to better understand what it is like to live with LOPD, including symptoms and impacts on daily life to ensure future research reflects what matters most to people living with LOPD.
Thank-you
- US$225
About this study
We are looking for individuals with late-onset Pompe disease (LOPD) who are interested in taking part in an interview study. The interview study is designed to better understand what it is like to live with LOPD, including symptoms and impacts on daily life to ensure future research reflects what matters most to people living with LOPD. will be required to provide documentation to confirm their diagnosis of LOPD. Interested in participating? To learn more or sign up, please contact us. Your insights could help improve how LOPD is understood and measured in future research.
Eligibility check
You'll be asked to upload a brief proof of diagnosis (e.g. a prescription, hospital letter or test result).
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