top of page
Late Onset Pompe Disease / USA / up to $150 / Ends May 2026
This study is for the US, to learn more about the experience of adults living with Pompe Disease.
Tickets are not on sale
See other events
Heure et lieu
12 mars 2026, 19:00 – 23:00
Zoom
À propos de l'événement
LOPD DE NOVO PRO STUDY: LOPD Volunteers Needed for a 1-hour Virtual Interview
Adults living with LOPD (late-onset Pompe disease) are invited to join a 1-hour online interview to share their experiences and help shape future treatments for LOPD.
What’s involved:
· Provide documentation to confirm diagnosis of LOPD
· 1-hour online interview (web-based via computer or tablet)
· Confidential, noninterventional
bottom of page