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Late Onset Pompe Disease / USA / up to $150 / Ends May 2026

This study is for the US, to learn more about the experience of adults living with Pompe Disease.

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Late Onset Pompe Disease / USA / up to $150 / Ends May 2026
Late Onset Pompe Disease / USA / up to $150 / Ends May 2026

Time & Location

12 Mar 2026, 19:00 – 23:00

Zoom

Study objectives

LOPD DE NOVO PRO STUDY: LOPD Volunteers Needed for a 1-hour Virtual Interview

Adults living with LOPD (late-onset Pompe disease) are invited to join a 1-hour online interview to share their experiences and help shape future treatments for LOPD.

What’s involved:

·        Provide documentation to confirm diagnosis of LOPD

·        1-hour online interview (web-based via computer or tablet)

·        Confidential, noninterventional

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